by Silvia C.
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website proudly supports awareness
and research for
a rare, devastating and lethal skin condition.
Any purchase made through the Amazon.com links help support the EB
(Epidermolysis Bullosa) Info World website, to make sure the
information will always be available for those suffering from this rare
devastating and lethal skin condition.
Chronicles" is now available on the KINDLE!!!! You may also purchase it DIRECTLY from the
Publisher and other major online retailers!
by Silvia C.
The Special Mommy
Chronicles is a series of columns written by Silvia C., the mom of a
Special Need child (son suffers from the Recessive Dystrophic
form of Epidermolysis Bullosa) which offers insights, stories
and struggles that go along in raising special kids.
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Publisher, ONLY $16.99!
Purchase from Barnes
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I am a physician who
works with disabled children and the parent of a son with
hydrocephalis. I have enjoyed reading your chronicals. God Bless,
Hi! I just wanted to
say THANK YOU for writing from your heart. You have written about
things that are SO hard to even talk about to people that don't
have children or children w/disabilities. I appreciate your
honesty, your encouraging words, and even your words of
frustration. I have thought many of these things myself even
though our children have totally different challenges. SO thank
you very much, and God bless you and yours.
What an incredible
writer you are, & such a blessing to be given such a beautiful
child!!! Congratulations for meeting all the challenges and
accomplishing such a great deal. You've obviously made quite a
difference in this world of parents who may be struggling &
overwhelmed with exactly what you understand & can overcome
b/c you have faith, hope and LOVE... above all else!!! I'm very
impressed with your site & mission~ Keep it up & God
I loved reading your
stories! You sound like an awesome mother and an inspiration to us
all. Thank you for telling it like it is....with heart & soul.
From a new mother of a special needs child.
God Bless You, and
your beautiful son! I would have loved to meet him! You are a truly
strong and blessed woman to go through such bitterness and come
out with such a loving, supportive heart. Thank you for your
words. It is hard being a mom of a special needs child (my
daughter has autism) but it is also one of the most wonderfully
precious gifts God could ever have given to us! Most life changing
events seem so wrong, yet they are the most rewarding. Keep up the
I really enjoy
reading your articles. I have a two year old son with Down
Syndrome who is the love of my life. Your articles have helped me
understand that there are other people out there who feel what i
do at times.
READING ALL THE
ARTICLES TOUCHED ME VERY MUCH, I HAVE A DAUGHTER WITH SPECIAL
NEEDS, CEREBRAL PALSY, AUTISM, MENTAL RETARDATION, EPILEPSY,AND
THIS HIT HOME!!!!!
I watched "The
Boy Whose Skin Fell Off" last night on TLC, was thoroughly
touched. I thankfully have a healthy daughter, but found myself
putting our feet in your shoes, and just needed more information
about this terrible disease. You are an inspiration to all mothers
out there (with or without special needs), and I commend you. God
bless you and your adorable son. I wish you all the best.
not be everywhere and therefore he made mothers."
-- Jewish proverb