Name: Jeffrey Thomas
Location: Las Cruces, New Mexico,
Form of EB: Junctional Non-Herlitz
Birthdate: February 2, 2000
Lives With: Mom
Tammy, Dad Gary, big brother Christopher
(also with EB) and also big brother Joey and big sister Breeana, both
More About Jeffrey:
This is my sweet baby doll Jeffrey
Thomas. He was born February 2, 2000. Jeffrey was born with Junctional
non-herlitz form of EB.
When I was pregnant with him we knew that there was a 25% change of him
being born with EB. Jeffrey has an older brother with the same type, his
name is Christopher, and he is 7 years old. He also has another brother
Joey 11, and Breeana 9, both EB free.
we knew there'd be a chance of him having EB we had Jeffrey in Albuquerque,
at the University of New Mexico Children's Hospital. This is the only
hospital we felt was qualified to handle his birth without hurting him.
Gary and I went to Albuquerque and met with the Neonatologist and my doctor
to prepare them in case Jeffrey had EB.
We tried to find out if Jeffrey would have EB while I was pregnant, but
there were some problems with Christopher's biopsy so we wouldn't be able
to tell with Jeffrey. From then on we treated my pregnancy as if he had
EB. Better to be fully prepared than not.
Jeffrey's birth went perfect because of all our preparations. He was in
the NICU for 48 hours basically for observation. Gary and I took care
of him and did his bandages; not the nurses. At birth he had some areas
on a couple of fingers, thumbs and the top of one hand where skin was
missing... he had been sucking on his little hands inside me :-)
As soon as he was taken to the nursery, Gary and a nurse (that took care
of Christopher when he was there) bandaged his hands. Gary stayed with
Jeffrey and showed all the doctors and nurses how to take care of an EB
is doing great. He is the happiest baby ever. He smiles a lot and babbles.
The word he says most is "ada" or "dada" (they mean
the same thing). He also says baba and pats his bottle when drinking it.
He says "mmm" and sometimes "mama". Also he loves
to play in his exersaucer (@ 7 months old) and watch videos. His favorite
video are the Wiggles. This is when I do bandies, it's the only time he
stays still long enough for me! I wrap his legs from hip to toes for protection
and any other areas that need it from trauma.
Jeffrey lights up whenever he sees any of his brothers or sister. He loves
them and he loves to hug them. They all play with him a lot. All three
of them are good and understanding him for a bandage change too!!!
e-mail to Jeffrey's Mommy
the Bradley Boys home
You've got a friend in me from Toy Story
Even if you're not, pretend to be. No one can tell the difference.
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